Apart from the public sphere and the norms set by society, the private sphere plays an important role in the lives of the disabled, including the personal experience of disability at a micro level: in their families, everyday routines and romantic relationships. In this chapter, issues of family structure are considered using a narrative analysis of interviews with women who use wheelchairs. Various cultural, social, economic and political determinants effect the formation of certain types of family structure and attitudes towards family life. At the same time, they interrelate with biographical factors that reinforce or weaken the limits of freedom and private life. Using narrative analysis, I demonstrate what role family plays in constructing the identity of a person with a disability, and how family members act as coauthors of individual biographies. This can be seen in those dilemmas of family life associated with the feelings, sexuality and emotional stability at the micro-level of the life experience and identification of women with disabilities.
The paper focused on the issues of representation of disability in a modern culture and historical evolution of this concept.
This article examines state–civil society relationships in contemporary Russia. Its objective is to assess opportunity structures of Russian non-governmental organisations (NGOs) that are intertwined with the state. The article presents qualitative data from fieldwork in the Russian cities of Moscow, St Petersburg, Nizhniy Novgorod, and Perm in 2009 and 2010. The focus of NGOs in the field of disability was chosen because of their roles as social service providers and as advocates for the rights of the disabled. The findings indicate that despite the Soviet legacy of an occupying state, Russian NGOs widen their opportunities by maintaining close relationships with state structures. Thus, litigation strategies seem to be an effective instrument for fostering social change for the benefit of the disabled.
There are over thirty million disabled people in Russia and Eastern Europe, yet their voices are rarely heard in scholarly studies of life and well-being in the region. This book brings together new research by internationally recognised local and non-native scholars in a range of countries in Eastern Europe and the former Soviet Union. It covers, historically, the origins of legacies that continue to affect well-being and policy in the region today, discusses disability in culture and society, highlighting the broader conditions that construct disability and in which disabled people must build their identities and well-being, provides in-depth biographical profiles that outline what living with disabilities in the region is like, and examines policy interventions, including international influences, recent reforms and the difficulties of implementing inclusive, community-based care. The book will be of interest both to regional specialists, for whom the problem of declining standards of health and well-being is a crucial concern, and to scholars of disability and social policy internationally
The paper uses the data of the Russian Longitudinal Monitoring Study to analyze the change in the state of health of the Russian population in the post-Soviet period. Age is regarded as a factor with a potential to influence incidence of chronic disease, disability and self-preservation behavior. The authors stress the importance of such factors of health deterioration as smoking and alcohol consumption.
Several approaches to the concept of fatherhood present in Western sociological tradition are analyzed and compared: biological determinism, social constructivism and biosocial theory. The problematics of fatherhood and men’s parental practices is marginalized in modern Russian social research devoted to family and this fact makes the traditional inequality in family relations, when the father’s role is considered secondary compared to that of mother, even stronger. However, in Western critical men’s studies several stages can be outlined: the development of “sex roles” paradigm (biological determinism), the emergence of the hegemonic masculinity concept, inter-disciplinary stage (biosocial theory). According to the approach of biological determinism, the role of a father is that of the patriarch, he continues the family line and serves as a model for his ascendants. Social constructivism looks into man’s functions in the family from the point of view of masculine pressure and establishing hegemony over a woman and children. Biosocial theory aims to unite the biological determinacy of fatherhood with social, cultural and personal context. It is shown that these approaches are directly connected with the level of the society development, marriage and family perceptions, the level of egality of gender order.